And the subject matter in detail can be appalling, uncomfortable, and just gross to people. Why you ask? Well, the subject I want to bring to light is my life with Crohn's Disease and currently living with an ileostomy. So what would make that appalling, uncomfortable, and gross?
Crohn's Disease is a chronic disease where the digestive tract, anywhere from the top to the bottom, can be affected by inflammation. And an ileostomy? Well, that's where the large intestine is removed and the small intestine is brought out through an opening to form what's called a stoma. The patient then wears an appliance called an ostomy bag on their abdomen to collect... we'll call it the "output." Now doesn't that seem like something that could churn a previously calm stomach?
I don't know many other people's experiences with Crohn's Disease, but for me? Well, I had stomach pains that seemed to never really go away and bloody diarrhea as well as bouts of nausea at times. Here is what I want to point out from the start: Yes, it's gross. We're talking about digestive issues. But it's not the end of the world. In fact, it may better your world. At least that's been my experience.
The life I lived with an active illness was one of pain, anxiety, and uncertainty. There were several hospital visits that interfered with school attendance and put me behind. More often than not, I missed out on typical teenage activities because I was sick. I didn't give up though. And that fight and persistence led me to having surgery and getting an ileostomy.
That led to hope! A light at the end of the tunnel! Now I feel like participating in life and the wonders it has to offer. As I continue on with this blog, I will share my story more in-depth including how it started, things I went through, and what led to my decision to have a permanent, life changing surgery.
Stay tuned!!
